Sara Talks about Vines & Vibes
August 26, 2018
It’s something we hear all too often: “Without warning, without notice, our once “normal” world was turned upside down.” A sudden health diagnosis can change everything for a family. Ten-year old Reagan was diagnosed with Intractable (medication resistant) Epilepsy just over a year ago. Since her diagnosis she has had countless seizures, devastating allergies to medications, hospital stays, and consistent treatments. Although she suffers daily from seizures and is still adjusting to her “new normal,” Reagan continues to inspire and encourage those around her. Reagan loves Hunter Hayes and we were happy to send her to his concert. According to Reagan’s mom: “his song Invisible is soothing for her: ‘There is so much more of this life than what you’re feeling now. And someday you’ll look back on all these days and all this pain is gonna be invisible.’ Pretty perfect for a kid going through a ton of heavy stuff.”
Hunter’s management invited Reagan backstage to meet him and even take a tour of his tour bus before enjoying the show.
“We are so blessed to have had this experience. Music is truly the best medicine. Reagan began playing piano at age 5, violin at 7 and saxophone at 10. She keeps all of this going despite a debilitating illness, Intractable Epilepsy.
Reagan’s life revolves around all things Epilepsy. Music is the one positive that remained in her life. There is a certain amount of “escape” that music provides. Hunter Hayes is a true musician. He plays 30 instruments, writes his own songs and is a self proclaimed “music geek.” During his concert, he encouraged the crowd to find what makes you different, because what sets you apart makes you great.
Reagan had the most incredible time at the concert. She got to not only meet Hunter Hayes, but she also got to take pictures with him on his tour bus! He was so kind and caring to her and this opportunity surpassed our greatest expectations! For this night, Reagan’s world was not all things Epilepsy- it was all things music and love! From the bottom of our hearts, we give our sincerest thanks. I only hope we have the opportunity to pay this forward!”